Planning for a Child with Special Needs
Planning by parents can make all the difference in the life of the child with a disability, as well as that of his or her sib...
Read moreWhen an aging parent shows signs of memory loss, confusion, or cognitive decline, getting them to seek help can be a challenge. Delays in obtaining a diagnosis of dementia are common, with Sci Tech Daily reporting that it takes an average of three-and-a-half years between noticeable symptoms of cognitive decline and a diagnosis.
Yet obtaining timely diagnoses can be crucial. Accessing early interventions can lead to better outcomes. As Time reports, Alzheimer’s treatments implemented early are more effective.
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When families know a loved one has dementia, they can prepare for decisions about long-term care and caregiving roles. The older adult may also still have time to execute a valid power of attorney nominating a trusted decision-maker.
While helping a parent with cognitive symptoms can be challenging, children of older adults with such symptoms can take steps to help their parents seek out a medical evaluation.
Approximately one in 10 of adults 65 and older have dementia. Dementia describes a group of progressive illnesses that affect thinking and memory and involve damage to nerve cells or their connections in the brain.
The most prevalent cause of dementia is Alzheimer’s disease. The Alzheimer’s Association reports an estimated 7.2 million people in the United States live with Alzheimer’s. Other types of dementia include vascular dementia, Lewy body dementia, frontotemporal dementia, and mixed dementia, which has multiple causes.
Sometimes, dementia-like symptoms are caused by an underlying medical condition. For instance, urinary tract infections can cause confusion, especially for older adults. Treating the underlying condition may help restore cognitive function.
According to the Mayo Clinic, symptoms of dementia, which may get worse over time, include:
Many people mistake dementia symptoms for normal aging. However, memory problems and marked cognitive decline are not considered a normal part of aging and should be assessed by a medical professional.
Convincing a parent to accept that they may need a medical evaluation can prove challenging. Parents may dismiss memory issues and cognitive challenges as a normal part of getting older. When an older adult experiencing early-stage dementia recognizes signs that something may be wrong — misplacing objects, forgetting names, repeating the same story — they may deny their symptoms because of fear of social stigma, loss of independence, or burdening family members. People with dementia that has progressed further may lack insight into their condition, not understanding that they need help.
Adult children of individuals who may be showing signs of dementia can encourage them to seek help. But there are several important considerations that can shape how the parent responds.
When a parent is in the early stages of cognitive decline and still able to recognize a problem and make decisions, one strategy is to plan a conversation with them. The Alzheimer’s Association recommends preparing for the conversation by noting what symptoms the individual seems to be experiencing and if anyone else has noticed a change.
The adult child may have the conversation or ask another trusted individual to do so. Because of family roles and expectations, some people may be more receptive to another older family member or friend than their child. Whether the adult child or someone else is stepping in, the conversation should be intimate. Staging a large intervention risks alienating and angering the parent.
The conversation should take place as soon as possible, but when the individual is comfortable, calm, and alert. During the conversation, the child or other trusted person can gently bring up the symptoms they have noticed and offer to go with them to the doctor for an evaluation. It may be necessary to have multiple conversations.
For families navigating this complex situation, at-home cognitive tests can be a helpful starting point. While an at-home test cannot diagnose Alzheimer’s disease or another cause of dementia, a test may prompt a family to seek professional help for their loved one.
One popular test that helps family members assess whether their loved one might be experiencing dementia is the Short Form of the Informant Questionnaire on Cognitive Decline in the Elderly. It includes 16 questions that aim to shed light on the loved one’s cognitive ability. The informant is asked to consider how their loved one’s cognitive abilities have changed compared with 10 years ago.
Another short cognitive assessment is a self-test: The Self-Administered Gerocognitive Exam (SAGE). Developed by Ohio State University, the SAGE test includes questions that capture different cognitive skills. It includes a question about how to draw a clock, which can illustrate problems with spatial awareness and memory.
Since at-home cognitive tests are not diagnostic, they might also provide false reassurance. This is why it is best to seek medical advice from a doctor and obtain a referral for an evaluation by a neurologist or other professional. If you or a loved one chooses to use a self-test, it can be helpful to bring it with you to the appointment.
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READ MOREIn addition to nursing home care, Medicaid may cover home care and some care in an assisted living facility. Coverage in your state may depend on waivers of federal rules.
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READ MOREMost states have laws on the books making adult children responsible if their parents can't afford to take care of themselves.
READ MOREApplying for Medicaid is a highly technical and complex process, and bad advice can actually make it more difficult to qualify for benefits.
READ MOREMedicare's coverage of nursing home care is quite limited. For those who can afford it and who can qualify for coverage, long-term care insurance is the best alternative to Medicaid.
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READ MORELearn about grandparents’ visitation rights and how to avoid tax and public benefit issues when making gifts to grandchildren.
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